----- Original Message -----
Sent: Friday, September 14, 2007 10:23
Subject: epilepsy in a child
My son has an intractable
seizure disorder - he is ten and also has brain damage and cerebral palsy. His disorder is called Lennox Gastaut Syndrome
which isn't a disease, just a label given to children who have similar types of seizures that medications can't control.
He has been fed via a
stomach peg since 2001. I don't want to bore you with all the history, but the key facts are these:
1. Last September his
diet - he is and has been on formulas since 2001 - was changed. He had had his epilepsy under medicated control for
about 9 months at that time. In November he started vomiting at night, then the fits re-appeared. By March this year he was
vomiting, often very violently, every night, sometimes for hours. His fits were totally uncontrolled.
2. His doctors were
of little help. They tested for reflux etc, to no avail.
3. It finally occurred
to me to fast him. I fasted him for three days using the master cleanser de-tox. The first night on the fast, he did
not vomit. 24 hours or so after he started fasting his seizures stopped.
4. I put him back on
his previous formula as by then i had a suspicion the diet change was the culprit. the fits returned but the vomiting was
reduced, but not stopped.
5. I then requested
that my son be placed on the Ketogenic diet believing that the ketosis in the fasting was the key to his seizures stopping.
6. he is on yet another
formula feed (soy based) which was supplemented with maltodextrin for carbs. After 5 days on the diet no improvement
in the fits. So .. it's not ketosis.
7. It must be his diet.
I have removed the maltodextrin and am giving him small amounts of cabbage and carrot juice instead for his carbs. the fits
have improved significantly, but not entirely stopped since then.
8. Today I have been
researching maltodextrin..leading to MSG..leading to Glutamate ...leading to you.
Basically i want to
put my son on a low glutamate, nutritionally complete diet which at first at least should be ketogenic. However, i am beginning
to strongly suspect that ketosis is not the issue and glutamate is.
I would be very interested
to know if you think i can achieve a low glutamate liquid diet and how i might go about that.
I hope to hear from
It's good to hear from you. I am sorry to hear about your son's
problems and surely hope that the information on the site will be of help. My experience thus far makes me certain that it
will. :) It sounds like you are already on the right path and have seen some indications of what the diet corrections
are capable of doing.
It is actually a combination of factors that make the
glutamate such a serious trigger for seizures. I am now fond of stating that if we are going to call something a "cause",
we had better be able to explain why it does not cause the problem in all individuals. That idea forces us to dig deeper for
the true distinguishing factor that we can truly label as the cause and helps us to differentiate between causes and triggers. In some
cases, this may seem like a moot point because the elimination of the trigger may stop the condition from occurring
but we still should know the true cause so that we can truly "cure" the condition rather than simply successfully manage
it...when that is possible.
Thimersol in vaccines and autism is a good case in point. Mercury
in vaccines is not the "cause" of autism, otherwise all children who received these vaccines would have autism, right? BUT,
mercury is a major neurotoxin (in fact, it is the most toxic element known to man, with fluoride being second) and one heck
of a major trigger for autism, especially in those brains of individuals who are suffering from food intolerance. The results
of gluten-free/casein-free diets in autistics has been astounding (www.gfcfdiet.com).
Same for glutamate in epilepsy.The high dietary levels of glutamate
(and aspartate) are waaaay too much for the brains of individuals that are already diseased by lectins and viruses. I now
believe down to my socks that viruses are the ultimate cause of epilepsy (and autism). The lectins of those foods
to which the individual is sensitive start the damage in the gut (villous atrophy leading to malabsorption of nutrients),
liver (reducing critical enzyme function, including conversion of glutamate to the neurologically inactive form of glutamine), and
brain (gluten can kill neurons!). The viruses adapt to that challenge and during that process the individual develops an "intolerance"
to the high levels of glutamate in their diet, often being provided by the very foods doing the harm elsewhere. Do you
see the cascade of events taking place here?
That is the beauty of the GARD, the elimination diet that I describe
consisting of the strict avoidance of all gluten (wheat, barley, rye), dairy, soy, corn and other sources of glutamate listed
on the site (http://www.dogtorj.com/ ). These same foods are rich in estrogen which also serves to sensitize
neurons. So, the diet puts a big Band Aid on the situation by drastically reducing the glutamate load on the diseased neurons
(and liver, etc.) but also provides the long-term solution by allowing the intestinal tract, liver, brain, etc. to heal
and start functioning normally again. Just the healing of the intestinal villi so that normal nutrient absorption can
take place is enough to heal so many things, including the improvement of immune function (which is critical when
viruses are in play).
The GARD has allowed miracles to take place in both pets and people
and it makes so much sense that I still have to pinch myself to make sure that I am not dreaming that is not already part
of mainstream thinking. The medical profession is getting closer with their ketogenic and now "modified Atkins diet" but they
are still off the mark. Ketosis is not necessary to halt seizures. Not a single on of my now countless epileptic dog success
stories came any where near ketosis. Researchers are now finding this out employing the modified Atkins diet. It is all about
the elimination of the offending foods that are doing the intestinal, liver, brain, and immune system harm while
these same foods are also providing staggering amounts of the non-essential, neurostimulating amino acids glutamate
and aspartate and neurosensitizing and immunosuppressive estrogens. So simple. So effective.
There are other elements, such as neurotoxic air pollution and other
environmental factors (including fluoridated water) and the "worst of the worst"need to actively address all of these
factors. But, the vast majority will see a major improvement by the elimination of gluten, dairy and soy and the obvious
sources of MSG and aspartame (NutraSweet). I do also strongly recommend non-fluoridated water. From there, we can do
more elimination if needed.
I do think you can accomplish this is a liquid form for your son.
Just about anything can be blenderized. You will need to OK this with your nutritionist/doctor but I do not see at all why
you cannot make more balanced meals in a blenderized form. He needs more than calories, proteins, vitamins and minerals. He
needs some of the phytonutrients that only fruits and veggies can provide. My newest section will be on phytonutrients, those
incredible substances in food (particularly fruits and vegetables) that do so many wonderful things in our body, including
the binding of lectins ( http://www.krispin.com/lectin.html ) so that they cannot do their harm. These phytonutrients (healthy sugars
and glycoproteins) are crucial to optimal health. Many incorrectly think, since they don't care for or have time for eating
fruits and veggies, that they will just take vitamins and that will be the same or adequate. Sadly, this could not be further
from the truth. So, we need to figure out how we can provide these things in a form suitable for your situation. Hopefully
a wise nutritionist can accomplish this for you. I would just use a professional juicer, I guess. Then we need good health
proteins (e.g. eggs and meats). Most liquid meals are the worst (e.g. Ensure). There is bound to be a way to use more natural
proteins in a liquid form. Can he not take anything by mouth?
I hope this helps. You are certainly on the right track here. The
feeding situation certainly provides an added challenge but I think with a little outside-the-box thinking, this too can be
conquered. I hope so.
Please keep in touch,
John B. Symes, D.V.M. (aka "Dogtor J")
www.manna4pets.com - Life's Abundance Pet Foods
* Read- "Food Intolerance- Man and Animals
versus Gluten, Casein, Soy, and Corn OR How We Won the Battle of Helm's Deep"
I hope you enjoyed your time here and got something important from your stay. It is
my goal to help all of mankind navigate through the jungle of medical information now available on the Internet and find the
truth about the origins of what we call "disease" as well as discover the natural solutions for these conditions.
We do have our health's destiny in our own hands more than we've ever
imagined, certainly more than most have ever been told. Think naturally and the answer will come.
Click here to go back to the Site Map to read more related articles on Dogtorj.com.
Become a member of the Friends of DogtorJ Email Club !
You can now go to the new site!
The New DogtorJ.com is done! Yes, the time has finally come for this homemade Website to go the way of the
buffalo. I know that you all join me in looking forward to using a site that is better organized and more accessible....prettier,
too! I've even corrected most of those annoying typos (I hope).
Feel free to check it out now at www.dogtorj.com. I am still working hard to populate all of the pages so don't worry if a link does not work. They should
all be active in the near future. In the meantime,
this current site will remain on-line until I get all of the bugs worked out.
Let me know what you think! It's not too late to make some changes.
I would still like to hear
from you personally, though.
I used to have a nice little form in this space that would
allow readers to send me a quick comment or testimonial. Unfortunately, as the Interent goes, I started getting
50-100 junk emails through this form and had to remove it.
So, until the new Website is up and running (soon!), I will have
to ask people to formulate an Email of their own and send it. I do want to hear from you so I would really appreciate
it if you could take the time to do this.
Simply title your Email "Visitor Comment" and include your name, occupation, comment/testimonial and
return Email address (if you want to be contacted) and send it to:
dogtorj @ dogtorj.com (Just remove the spaces on each side of the @ sign)
Please do not use this form to ask medical questions. See
the Contact section for instructions for sending DogtorJ an Email inquiry concerning a medical
be getting a major facelift in the very near future. Yes, the time has finally come for this homemade Website
to be taken over by someone who actually knows what they are doing. I know that you all join me in looking forward to having
the site better organized and more accessible. It'll be prettier, too!
This is taking place for a number of reasons, the most of important
of which will be revealed in the upcoming months. Yes, the book is finally in the works but there will be a
major awareness project to go along with it.
So, please stay tuned. Anyone who would like to get on my mailing list can do so by simply using the visitor's comment area (like the one above)
found at the bottom of each page.
Onward and upward!